Tag Archives: Diabetes Online Community

Outline: What will be my message?

The following is a rough outline of the message I intend to send. It is only a starting point. My message is apt to change. Some of this will be discarded. Other parts will be explicated.

My message has congealed. My message is congealing.

Gritty realism and hope. Positives and negatives. Individuality and community. Freedom and fate. Ignore none of these.

Acknowledge the shit life happens to throw at you; however, do not let it weigh you down.

Aim for self-development, aim for growth. Connect goals with this ideal.

The connection between diabetes and life as a whole. What does diabetes have to teach us about life?

Mindfulness, diabetes, and life. Mindfulness of ones BG patterns, the impact of various foods and activities = essential part of diabetes management. Emphasize its value in life as a whole.

Focus on focus. Emphasize it.

Acknowledge limitations. Focus on freedom.

Acknowledge X, focus on Y.

Focus on the power we already posses. Focusing just on empowerment = one sided.

Focus on what you can control. Avoid focusing on things that depend on other factors.

Focus on behavior.

Focus on habits.

Focus on perspective.

Obsessing over circumstance is not the most beneficial option.

Above all else, make it about eudaimonia.

Top 5 things about #DBlogWeek

Before proceeding I would like to thank Karen Graffeo for organizing DBlogWeek and everyone who participated.

I began blogging in late December 2013, so this is my first DBlogWeek.

Initially I was hesitant about joining this event. A week or two before I had published posts on 6 consecutive days – my personal record. Would I be able to do it again?

Obviously I did join, and, as it turned out, my initial fears were unfounded. With that said, it wasn’t easy.

Attempting to keep up with other people’s posts was difficult. I fell behind. Although I failed to keep up, in the upcoming days I will make sure to read the ones that I missed.

Anyway…

Here is what made #DBlogWeek a great experience:

  1. It fosters a greater sense of community in the dblog solar system;
  2. It exposes one to different perspectives;
  3. One makes connections with formerly unknown people;
  4. It eliminates the need to find something to write about;
  5. It gives you an excuse to spam your followers with blog posts :p

May good blood sugars be with you all until next time!

Diabetes Life Hacks – #DBlogWeek

Know what amuses me? Of all the DBlogWeek prompts, this one is the most challenging! We have discussed changing the world, mental health, our personal mantras. I have written about these with ease, only to have this ease obstructed by a pebble. It’s absurd! I love absurdities! For this I am grateful…

Confession: I am not, by any stretch of the imagination, a “neat diabetes tricks” kind of guy.

If your pump clip breaks, put it in your pocket. That’s my most marvelous trick. Call me Mozart! My creativity knows no bounds, and I am prolific in my output.

In all honesty, I am the Justin Bieber of diabetes tricks…

Does that analogy work?

Nah… I don’t share my “neat” tricks, so I can’t be hated for doing so.

In all seriousness, seriousness has been lacking in my tone thus far. Really though… in all seriousness, that last sentence was stating the obvious.

Mantras and Reminders – #DBlogWeek

I planned on creating a collage of quotes to express my mantras. Sometimes plans change.

Re-viewing my recent posts, I observed a budding fear of hypoglycemia. I am no stranger to this. I once let this fear fatigue me.

Moving forward, I am not willing to allow the past to repeat. Therefore, I have tailored my plan.

Without further ado, here are some of my mantras in my words:

  • Change is the law of life. The lows won’t last forever;
  • That is how I feel, this is how I act;
  • I may stumble, but I won’t fall;
  • Perseverance is perfection;
  • I won’t flee from my reflection;
  • A dark sense of humor is a diabetics best friend;
  • I am alive. I have emotions. I accept them;
  • This Is Sisyphus!

I will repeat these throughout the upcoming months. They have assisted me; may they assist me again!

What you do is up to you; the doc is here to help.

#DBlogWeek – A novel approach to discussing mental health

Diabetes and mental health – more specifically the connection between the two – fascinates me. I am excited. I am also concerned. Will I be able to have a narrow focus? Will I ramble on? Heck…will this post even make sense?!

The gods had condemned Sisyphus to ceaselessly rolling a rock to the top of a mountain, whence the stone would fall back of its own weight. They had thought with some reason that there is no more dreadful punishment than futile and hopeless labor.
~ Albert Camus

We all have rocks to roll. Blood glucose levels are one of mine.

By unfamiliar forces condemned, I roll this rock up the hill of perfection, only to fail…repeatedly.

Now I stand face to face with my own humanity.

Smacked by the futility of the task, consciousness of my predicament arises. Responsibility drops on my shoulders. The moment of decision has arrived.

A book of options is presented. I am free to look it over, free to choose.

Human agency makes its entrance.

My reaction is not predestined.

Inclined towards my habits, the familiar option is chosen. All others are ignored.

For one reason among many, with a spirit of adventure I’m filled, and I decide to forsake my habits. I choose a novel option.

Both of these paths I have traversed.

Which course will I follow?

————

Implicit herein lies most of the mental health difficulties I have faced whilst living with diabetes for the last 12 years.

I hope that some beams of light shine through as well.

————

In the past, I have described in greater specificity some of the psychological challenges that I have faced. In the future I will likely divulge more.

A broad approach for a broad topic. That is the approach I have taken here.

————

Update: I experienced diabetes-related anxiety after publishing this post, which you can read about here:
https://t1dme.wordpress.com/2014/05/14/speaking-of-diabetes-and-mental-health/

#DBlogWeek – If I could change the world…

Warning: This post is going to be hyperbolic at times.

Jean Paul-Sartre once said “hell is other people.” People with diabetes know this all too well. The tragedy of the situation is that it does not have to be that way.

Other people cause us hell when health insurance representatives try to make it difficult for us to receive medical technology that will improve our standards of living.

It does not have to be that way.

Other people cause us hell when when they decide to charge us 5-star prices for fast food quality test strips.

It does not have to be that way.

Other people cause us hell when they cast judgement upon us, sniping our self-esteem.

It does not have to be that way.

Other people cause the impatient among us hell when they play dumb after we have explained diabetes to them countless times.

It does not have to be that way.

Other people cause us hell when they trivialize or exaggerate diabetes.

It does not have to be that way.

Other people cause us hell when they act coldly…robotic…inhuman when we mention the unfair portion of BS that has been allotted to us.

It does not have to be that way.

Other people cause us hell by doing this… Other people cause us hell by doing that… Other people unnecessarily cause us hell in numerous ways. That is the underlying issue that I care most about.

This is unacceptable! This is inexcusable! This must stop!

As people with diabetes, we have enough to deal with as it is. I accept that. What I can’t accept is other people making things artificially difficult. Thankfully, things are changing.

Other people’s actions, occasionally, throw us into a pit. The actions of those in the Diabetes Online Community protect us from the pit, and pull those within out of it.

Our actions are our hope!

Change of Plans

My 12 year old sister was diagnosed with type 1 diabetes on April 1. Needless to say, my thoughts are centered around helping her to transition to her new life. Therefore, I’m going to put the series of posts that I was planning on hold indefinitely. Doing what I can to help her is more important than this diabetes blog.

With that said, I’m not disappearing from the Diabetes Online Community. The DOC is essential for my well-being.

If you want to stay updated, follow me on twitter @T1DME

April: A new month, a new direction

March has been a month marked by indecision.

Although I’ve had a plethora of ideas, they proved to be too many.

Despite having published posts for this type 1 diabetes blog, my work has felt pointless.

Having overcome diabetes burnout, I had lost a unifying theme.

April is a new month. With the onset of a new month, my indecision will melt away. The seeds of a new theme are about to take root and, over the upcoming days, weeks, and (possibly) months they will bloom.

The pointless pomp, the alliteration, the flowery language. All of that ends here; henceforth, I shall be clear.

Here’s what you need to know:

  • I’ll be starting a new series of posts relating to diabetes and loneliness;
  • The first post in the series will be published sometime next week;
  • I’ve been in the process of writing a guest post for a well known diabetes blogger;
  • The vagueness of this post is intentional;
  • For more information, follow me on Twitter @T1DME
  • I hope that you’re having a good day 🙂

Holiday Confession Time

It’s an inevitability…

Whenever I attend family gatherings, that dreaded question is apt to get asked: “is your diabetes under control?” To which I invariably respond with a lie: “Yes.”

Sure, sometimes I do in fact mean it, but my intentions don’t wipe away the dishonesty of my reply. The dishonesty is multiplied.

Lately I have been doing better; however, despite this year being my best year on record, the lowest my A1C has been in 2013 is (if I recall correctly) 7.9% – not nearly as deathly as 14, but there could still be some improvement.

Before proceeding, I must clarify something: I am not ashamed of these facts, nor am I defensive about my past. What has been done has been done, and no amount of shame will wipe the past away, nor will trying to defend it do me any good in the future. My past is a resource: it’s there for me in the present as a treasure trove of wisdom as I wonder onwards into the future.

Continuing…

Once upon a time (2001-2003), when I was on an anachronistic (and oppressively strict) meal plan and was testosterone deficient, perhaps I could have honestly given an affirmative reply. Like my beta cells, those years have irrevocably gone away.

When I transitioned from MDI to the insulin pump in 2003 (a blue Deltec Cosmo), I was handed an unprecedented level freedom. There’s, of course, nothing wrong with freedom. Freedom rocks…but, as the cliche goes, with freedom comes great responsibility. Unfortunately, as a youngling with undiagnosed ADHD, responsibility wasn’t my strong suit.

I abused my freedom. I used my insulin pump as a free pass to eating whatever the hell I wanted when I wanted. This was the start of my not-so-helpful habit of ignoring my diet as a factor in managing to live with type 1 diabetes.

Then puberty hit, and extreme insulin resistance set it – on top of an amplification of my already rebellious spirit. It was during these years that I rebelled against diabetes.

In the ensuing years, I ignored diabetes. I tried to compartmentalize the incompartmentalizable. As a result of my efforts, my A1C peaked at around 14. Even worse was the effect that it had on others.

Given my desire to expunge all “unnecessary” thoughts of diabetes, I never attempted to help other people with type 1 diabetes. I never considered taking part in a diabetes walk. I didn’t seek to be a part of a diabetes community. I had isolated myself.

In retrospect, I was in denial; however, it was a softer form of denialism. I was in denial about the impact diabetes can have on the rest of our lives. I was in denial about my dependence on others in dealing with diabetes.

This gloomy period didn’t last forever.

Around the time I was 16, my A1C naturally started to lower on it’s own. My type 1 diabetes remained an evil that I tried to ignore.

Ultimately, reaching adulthood was the turning point for me. It was only then that I started to take my health more seriously. It was only then that I began confronting my bad habits which had accumulated over the years.

All of this is in my past.

I confess these things not as an end in itself, but as a means. I am, through this post, taking a step towards cultivating a more skillful disposition. In recollecting my imperfect past, I’m preparing myself to flourish in the future.